.
Before you surf around let me rapidly introduce myself.My name is
Raphael and I just went through my second kidney transplantation
and "
(Thank G-D) I'm fine now
and the Doctors as well as myself are very optimistic for the
future and
"
(With G-D'S help) I will be able to restart my normal
activities in a short while.
While I was staying at the hospital after the surgery,to my great
sorrow I noticed that two other Jewish people were staying in the
same department I was,they weren't here for a transplantation(which
is technically"a good thing")but unfortunately for
treatment of a particular problem that was/is kidney-related(
which is usually not "a good thing).
That made me thinking,realizing that if in Belgium,this tiny
little country with it's relatively small Jewish population,there
are several people of the community with kidney problems,than
chances are that in America and Israel(and Canada,the U.K.,Australia
and many other countries) there are many more Jewish young and
older people who have and had kidney problems and
transplantations.
I thought that this web site might be an excellent way to unite
our knowledge,experiences and especially to collect stories of
Hashgacha Pratis(obvious Divine intervention/open miracles) that
some of us may have witnessed.
Non-Jewish (ex-)patients are of course very welcome as well to
share their experiences,or ask for advice to some people out
there who have plenty to give from their own experiences,or to
act as one of the operators on this web site.The more people I
can enroll to help,the more frightened and confused patients
we'll be able to assist and help.
This web site's main aim is to offer reassurance and possible
advice to people who still have to go through the hardest and
toughest parts of the sometimes long and painful process a kidney
problem patient,dialysis patient or even post-transplant patient
can experience.Talking to people who went through situations I
was going to have to face,always had a positive effect.It made me
more confident seeing that they had managed to beat the
problem,to see that the situation or the problem was definitely
not hopeless or just for once to be UNDERSTOOD!!!!.
I believe that is often the keyword that misses even in the most
supportive families.They simply don't understand the effect a
long term,or even short term problem like that can have on (young)
boys/girls.Of course I'm aware that for adults it might even be
more difficult and frustrating,because they have many more
responsibilities than young people,but I emphasize
youngsters,because I believe (I may be wrong) that at a young and
fragile age somehow the unfairness of it all feels much stronger.
Well on this web site "
(with G-D'S help) and with a little Hatslocho(success)
there will be people ready to listen and to understand,I guess
the forum would be ideal for that purpose.
I really encourage people with some experience in this field to
contact me and to operate as a "listener" to everyone
who needs it.It's not a full time job,you don't even have to log
in every day ,just check the forum form time to time and see if
there's anyone you may be able to help
.
One more goal I would like to accomplish with this web site is
preparing new patients with all kinds of potential Halachic(the
Jewish law) problems that may and probably will arise sooner or
later.
I know that I sure had a lot of Sheilos(questions),that at a
particular moment I had no one to ask the ruling to(especially
while on peritoneal dialysis) ,so I abstained from some
privileges that turned out to be Moetar(permitted),or vice-versa.
So if you ever had an Halachic(the Jewish law) dilemma while on
peritoneal dialysis,hemo dialysis
or in any other instance,be so kind to share them and I'll post
them on the web site.
Please don't expect rulings and decisions on this web site for
this is definitely not the point,a competent Rav(Halachic
Authority,comparable to a judge) should be consulted.
Rather trough this web site you'll be helped to anticipate some
unavoidable Halachic(Jewish law)questions that will arise.
I also would like to create a Tehillim(Jewish Psalms written
mostly by King David) list on which people can add their name in
case there are planned to undergo sensitive surgery,difficult
treatment or simply need a Yeshouah(redemption).I'd rather have
the list empty at all times,thus concluding that no one is in
need,but unfortunately until the coming of Mashiach(The redeemer
of the Jewish people),may he come speedily in our days,that seems
very unrealistic.
So I will need volunteers who'll take upon themselves to check
the list and recite Tehillim for the names listed on a regular
basis.
I hope that "
(with G-D'S help) this web site will receive positive
reactions and I count on you,ex-patients and patients to help me
here!!
Thanks
Raphael